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Create: 2024-05-21 Update: 2024-06-03 12:03:19

Евгений Мартынов рассказал о том, с какими проблемами сталкиваются взрослые пациенты с орфанными заболеваниями

Благодаря достижениям современной медицины пациенты с орфанными заболеваниями получили возможность жить дольше, однако действующее законодательство рассчитано на «детей-инвалидов». В итоге люди, достигшие 18-летия, сталкиваются с проблемами при получении медпомощи, наличие инвалидности не обеспечивает необходимую поддержку от государства.

1️⃣Одним из важнейших аспектов поддержки пациентов с орфанными заболеваниями является получение от государства специализированного питания, которое является для них жизненно необходимым.

Подробнее о правилах получения специализированного питания рассказали юристы проекта 👆

ℹ️По вопросам, возникающим при получении государственной медицинской помощи, в том числе по вопросам соблюдения предельных сроков ожидания медицинской помощи, обращайтесь в медчат проекта «ЗдравКонтроль».

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Some messages aren’t supposed to last forever. There are some Telegram groups and conversations where it’s best if messages are automatically deleted in a day or a week. Here’s how to auto-delete messages in any Telegram chat. You can enable the auto-delete feature on a per-chat basis. It works for both one-on-one conversations and group chats. Previously, you needed to use the Secret Chat feature to automatically delete messages after a set time. At the time of writing, you can choose to automatically delete messages after a day or a week. Telegram starts the timer once they are sent, not after they are read. This won’t affect the messages that were sent before enabling the feature.

Евгений Мартынов рассказал о том

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